Saturday, October 10, 2009

About Face

I must have jinxed it. The very day I post that I am sleeping all the time and how good it is ,is the last day I have sleep well!!!! I wonder if all that sleep was a prelude to my seeing double and falling over three times and another trip to emergency. The doc's don't know what caused it but suspect a small stroke. I have felt pretty good since then. O' crap,I opened my big mouth again. I hope I haven't jinxed it twice.I need to learn to keep my mouth shut, but I am a Porterfield, I have the motor mouth genes!!!!

Tuesday, October 6, 2009

Sleeping Beauty with a beard.

There has been good news treatment wise. I have been taken off Oxaliplatin or Oxycrappin as Curt calls it and the steroids. I feel much better and I don't feel that gut wrenching sick any more. I was taken off that drug because it causes nerve damage if a person stays on it for too long. I still have nerve damage symptoms and we hope they are not permanent. My feet feel cold and tingle up to my knees and my legs are very week. Standing up is always a big effort and I am a bit shaky for a few seconds. I was hoping that I would have more energy and be able to get up and about a little more. The opposite has been true. I have been sleeping a lot and very soundly. I have never known such fatigue. I am not complaining, I just didn't expect this. I will get a good 9-10 hours at night then within being up 2-3 hours I am fast asleep again, this time for a couple hours or so. By late afternoon I catch a short nap. You would think after this much sleep that I would not sleep well that night. Not so! I will crash and be in bed for 8:30-9:00 ready for 10 more hours. I just think that this is my body's way of dealing with this raging battle that is going on inside and the steroids and Oxycrappin were not allowing my body to go into sleep mode.
The other change is that oncology will only book 1 round of chemo at a time instead of a block of 8. The reason for this is my blood count is now very low and they won't infuse me if my count is too low. This is the other reason I am sleeping so much now. My body is working very hard to reproduce red blood cells. This condition is called Anemia. I am glad to be feeling better but this battle has just moved into another phase. I use my blanket a lot now. We moved the big blue recliner upstairs and brought the little one downstairs. I sleep in the big blue recliner with my blanket alot these days. I just hope I don,t wake up to find seven dwarfs hanging around.